The Wish Kite

TitleThe Wish Kite
Publication TypeJournal Article
Year of Publication2004
AuthorsSteele, RB
Journal TitleJournal of Religion, Disability & Health
Volume7
Pages55–63
ISSN1522-8967
Abstract

Abstract The author's eight-year-old daughter, Sarah, already suffering from a debilitating genetic muscular-skeletal disease {(Fibrodysplasia} Ossificans Progressiva or {FOP)} is diagnosed with a noncancerous brain tumor {(Craniopharyngioma).} She is taken to Children's Hospital of Philadelphia, where a neurosurgeon who specializes in treating craniopharyngiomas works, and next door to the Hospital of the University of Pennsylvania, where leading research into {FOP} is conducted. Treatment protocols for the tumor are discussed, but the final decision to do surgery is made, indirectly, by Sarah herself, when she sings her school's theme song, {“Accentuate} the Positive,” in the doctor's office.

URLhttp://www.tandfonline.com/doi/abs/10.1300/J095v07n04_05
DOI10.1300/J095v07n04_05

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